Clinical Perspectives in the Management of Down Syndrome:
This book is intended as a comprehensive, practically oriented reference on pulmonary hypertension within the context of adult congenital heart disease (ACHD). After an introductory chapter on pathophysiology, the various types of pulmonary hypertension that may be encountered in ACHD are discussed, highlighting the specifics observed within different patient categories. The diagnostic approach is then addressed in detail, and the last section of the book is devoted to management options, from conservative approaches to interventional treatment and the concept of treat and repair. Management in specific patient subjects, such as pregnant women, Fontan patients, and Down syndrome patients with Eisenmenger syndrome, is fully discussed, and guidance is also provided on palliative care. Pulmonary arterial hypertension related to congenital heart disease (PAH-CHD), despite significant similarities in lung pathohysiology, differs significantly from other types of PAH in terms of mechanism of onset, natural history and management. Mistakes and pitfalls in the management of patients with PAH-CHD are often related to a lack of knowledge or expertise in this condition. Pulmonary Hypertension in Adult Congenital Heart Disease will be a valuable resource and learning tool for all who care for patients with ACHD, both in tertiary practice and general cardiology.
While most people meet their child for the first time in a delivery room, some parents have to meet their child in the reception area of an administrative building.Not Always Happy is a humorous and sharp chronicle about adopting and raising a son with Down syndrome from the Maine foster care system. The author quickly learns that life is best lived by expecting the unplanned when she makes the decision to become a parent in her late forties. As her unconventional family moves along in this life, she and her husband are less aware they are raising an atypical child or an adopted child. They are raising their child, and their family struggles with the same universal themes that any family goes through.Parents who have children with Down syndrome and other disabilities represent fifteen percent of all children between the ages of three to seventeen.Wagner-Peck provides an access point to start the debate about adopting a child with special needs along with her decision to homeschool.One of only a few books in the marketplace specifically addressing adopting from the foster care system.Kari Wagner-Peck, MSW, is a writer, blogger, and a freelance development consultant while she homeschools her son. She also has experience in arts management including development, event planning, and public speaking. Her writing has been featured in the Huffington Post, the New York Times’ "Motherlode" blog, the Sydney Morning Herald, Yahoo Parenting, Parents Magazine’s; and Empowering Parents. Kari Wagner-Peck currently resides in Portland, Maine. ungekürzt. Language: English. Narrator: Ramona Master. Audio sample: http://samples.audible.de/bk/acx0/088493de/bk_rhde_002536_sample.mp3. Digital audiobook in aax.